IntelliCare Privacy Policies

Website Privacy Policy

This privacy policy defines:

  • The reasons why we collect certain information from you

  • The types of information we collect

Log Data

Log Data gathered from the website or the mobile apps is de-identified to remove as much personally-identifiable information as possible and is only used in aggregate to better understand users of the Website as a single group, and not you as an individual.

Google Analytics

The team at Northwestern uses Google Analytics to learn about people who visit the IntelliCare website. Please refer to Google's policy regarding the types of de-identified data that Google Analytics collects. https://support.google.com/analytics/answer/6004245?hl=en. The IntelliCare project does not share any additional information beyond what information Google already collects. Furthermore, the data collected by Google Analytics is completely separate from data transmitted by the apps and it is not possible to link the two collections, even if the data originates from the same device.

Cookies

IntelliCare uses cookies to make the web experience more personal. Cookies are a kind of short-term memory for the web. They are stored in your browser and enable a site to 'remember' little bits of information between pages or visits. Some cookies collect data across many websites, creating behavioral profiles that can be used to decide what content or advertisements to show you. Most web browsers give you the option of blocking cookies completely, or just for certain sites. All cookies created and used by the IntelliCare website originate from the Google Analytics service. The IntelliCare website does not introduce any additional cookies or tracking beyond those already created by Google.

IntelliCare Mobile Apps Privacy Policy

This policy applies to individuals who are using IntelliCare on their own, and are not participating in a research study. If you are involved in an IntelliCare research project conducted through Northwestern University, consult the Informed Consent document that that applies to your study. Contact the Study Coordinator, Susan Kaiser at susan.kaiser@northwestern.edu or 312-503-1249 if you have any questions.

This privacy policy defines:

  • The reasons why we collect certain information from you

  • The types of information we collect

  • How we store your information, and who will have access to it

The reasons we collect certain information from you

We collect information for two reasons. The first is to support research on how apps like IntelliCare can be most helpful to people with Anxiety and Depression. The second is to improve the quality of the IntelliCare apps and deployment platform. We need to understand how people are using them in order to make them better.

The types of information we collect

IntelliCare apps DO NOT collect or share any Protected Health Information. Protected Health Information (PHI) includes any health information that can be linked to a specific individual. Information like your address, first and last name are examples of PHI (for a longer list of identifying information, see here).

IntelliCare apps DO collect some de-identified data. De-identified data is either impossible or very difficult to link to a specific person. De-identified data includes such things as how often you use an app, click patterns on your mobile device, and information you have specifically chosen to enter in the apps (e.g. upload a picture, respond to question, enter information in a text box).

Here is a complete list of the de-identified data we collect:

  • Information about your phone (e.g. model, manufacturer, Android version)

  • Information about IntelliCare apps (e.g. app name, version)

  • App-specific information (e,g. when/how often you open each app, whether you complete a specific clinical exercise, how much time you spend reading help content)

App-Specific Information Collection and Permissions

In order to understand how people like yourself use IntelliCare apps, each IntelliCare app transmits data back to our research servers consisting of events such as

  • When you open the app.

  • Whether you complete a task that the app is built to help you with.

  • When the app sends you a notification or reminder.

This event information helps us validate whether the IntelliCare apps are making a difference in our users' lives as well as identifying areas where we can improve the apps.

As you set up the IntelliCare apps, they will ask you for permission to access certain data and features on your device. Here is a list of the permissions that are requested, and why they are necessary:

  • We create a unique identifier for each user. We ask for the Identity permission in order to generate an identifier derived from your Google Account e-mail. Your e-mail address cannot be discovered from this identifier and only the identifier leaves your device - never your e-mail address.

  • We store the events generated by the app on your local device so that we can access it in cases where your device does not have an active network connection. The Photos/Media/Files permission allows us to store this information until we can transmit it to the server.

  • The Wi-Fi Connection Information permission allows us to determine when your device is connected to a Wi-Fi hotspot and when it's using your mobile device's limited data plan. To conserve our users' mobile data quotas, IntelliCare apps only transmit data when a Wi-Fi connection is available so we don't spend our users' limited data allotments.

In addition to the items above, different apps may request additional permissions to function properly:

Aspire

In addition to the permissions above, Aspire uses the Photos/Media/Files permission to access your local photos so that you can select a custom image for your values. Photos used within the Aspire app never leave your device and are never shared outside the app.

Daily Feats

If you enable the Fibit or Jawbone UP integrations, your device will query those services to check your progress toward your goals. Your progress or any other data from those services will not be transmitted to the IntelliCare servers or researchers.

Day to Day

Day to Day uses the Location permission to determine the location of your device. This information is used to determine the current time of day that powers the illustration on the main screen. Your location information is not used in any other way and is never transmitted from your device to the IntelliCare servers or any other third parties.

My Mantra

My Mantra uses the Photos/Media/Files permission to access your device's local photo albums. This allows My Mantra to use your own images in your mantras. My Mantra uses the Camera permission to let you use the camera to take pictures for your mantras. The app never transmits your images from your device to a third party, including the IntelliCare researchers.

MoveMe

MoveMe uses the Calendar permission to read and write scheduled exercises to your device's calendar. The app does not send any calendar events or other information to the IntelliCare servers.

Slumber Time

Slumber Time uses the Calendar permission to read the local calendar so that the next upcoming event may be displayed when the app is in alarm clock mode. The app also uses the Microphone permission to periodically detect the volume of the loudest sounds and their pitches. Slumber Time does not transmit either of these kinds of data from the device.

Social Force

In addition to the standard IntelliCare permissions, Social Force also uses a variety of custom permissions:

  • Phone and SMS permissions allow Social Force to inspect your call and text messaging logs. This information is used to create your contact bubbles that reflect your frequency of contact by growing larger.

  • The Contacts permission allows the app to look up contact information so that it can make phone calls and text messages as easy and direct as possible.

  • The Calendar permission permits the app to add scheduled calls and other contacts to your local calendars.

None of the additional information gathered by the app with these enhanced permissions is ever transmitted to third parties of the IntelliCare server.

If you have any questions about these permissions, please get in touch using the Contact Us option in the menu on the app's main screen

How we store your data and who will have access to it

Your de-identified data is stored on server that is only accessible to the project team at Northwestern University. The team accesses this data regularly in order to improve the quality of the apps. These data may also be shared with researchers who are conducting projects that have been approved by their Institutional Review Boards (e.g. https://irb.northwestern.edu), or have executed a Data Use Agreement with Northwestern University.

Who can I contact if I have questions?

cbits@northwestern.edu

Northwestern University Depression Research Study

The Artificial Intelligence in a Mobile Intervention for Depression and Anxiety Research Study (AIM) is investigating the use of Internet and mobile phone technologies to teach mood management skills to people with depression and anxiety. Research has already shown that these skills, when delivered by a therapist face-to-face or over the phone, help people with depression to improve their mood. The goal of the AIM study is to develop the same kind of treatment, delivered via the Internet and mobile phone technology.

The possible benefits to you from this study include helping to shape a new intervention for people experiencing depression. Taking part in this study may help scientists to better understand how to treat depression using new technologies.

Anyone who is interested using a mobile applications that contain tools to help people become more aware of their moods and what causes them to change is invited to participate. During the study, participants will test these tools using their own mobile devices, several times per day as they go about their daily activities. While using the mobile app, participants will answer questions about their health and provide suggestions and feedback on how the intervention might be improved.

To participate in the AIM beta testing study, you must:

If you are interested in participating, and would like to begin using the apps, you may download the IntelliCare apps from this site.

When you first launch an IntelliCare app, you will need to complete the informed consent form to join the study. (You may decline to fill out the form and still use the app's full functionality without being a study participant.)

Individuals who consent to participate in the research study will be entered into a lottery to win a $50 Visa gift card.

If you encounter any problems or have any questions about the apps, please e-mail c-karr@northwestern.edu and we will be happy to respond promptly.

For more information, contact a staff member by email at ehealth@northwestern.edu, or the study coordinator by phone at (312) 503-1249.

In the future, if you would like to participate in similar kinds of studies, please consider joining our participant registry.

This study (STU00074405) has been approved by the Northwestern University Institutional Review Board.